“What’s That Spot On The Back Of Your Leg?” – My Adventure With Melanoma

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10 years ago today was the day of surgery. The Doc said “I think we’ve got it all.”

The “it” was the Melanoma that had showed up as a spot on the back of my leg. In a place I couldn’t see, in a spot I wouldn’t have thought to check. Because I wasn’t really paying attention anyway..to that spot..on the back of my leg.

The Melanoma spread fast. The doctor said “you need to get this checked out… Now.” When I told her I didn’t have insurance she said “we can see you here” (at the NIH – where I had volunteered as a “healthy” patient for a clinical trial but slowly learned I wasn’t as healthy as I thought.

A few days later, I was in the office of the chief Dermatologist at the NIH who agreed with the Doctor who had initially diagnosed my little spot. “You need to have this removed – Now!” – same exact words, but a lot more definitive and with a tone I will never forget. She informed me that she had colleagues who would be able to see me in their office which was closer to my home. “Tell them I referred you” she said. “they will be able to assist you and I’ll call them and tell them you’re coming.”

Both Doctors were extremely compassionate and helpful in assisting me with coordinating care. If you’ve ever been on the receiving end of a conversation that involves the term “malignant melanoma”, you know how great it is to have that critical blend of compassion, wisdom and a great navigational plan.

The picture above was where I was when I received the second phone call from my Doc informing me that they hadn’t got it all and needed to schedule surgery with a plastic surgeon because of where the spot was located. Sitting there at the end of the jetty in Old Harbor, Block Island (RI), I thought about the people who are most important in my life – my family and friends. My parents (who were with me) encouraged me to get back to CT via the high speed ferry and then home to MD to have the surgery. It was a no-brainer decision that was the right one. Financially however, not having insurance and having the diagnosis that I did and the surgery that I needed was costly. I lost a lot financially but gained my life and a fresh new perspective about that which is most important.

10 years ago today, I was really, really lucky that my itty bitty teeny tiny spot, located in a place I would never check, was found really, really early.

Need to know where to start with checking your skin? Start here

#melanoma #melanomaawareness #checkyourskin #getnaked #cancer #dcmfcanada

My 6:00am Wound Care Nightmare

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It happened again just as it always has. 6:00 am, I have just fallen back asleep after getting up and there’s Mercy, your friend, walking into a room where I am sitting and looking down at me with a big smile and a warm hello.

She asks about you and I tell her you have died. Slowly it occurs to me that she has died before you so technically, both of you are in heaven.

I walk downstairs and find myself in a hospital where I have once worked and there you are, with a strange hand held pad thingy in your hand telling me you’re trying to find your appointment. “It’s at 9:00am,” you say.

“It’s 11:00”, I tell you, sadly realizing that again, we have missed an appointment and I’m angry at myself for scheduling it too early because you always told me that you preferred all of your appointments to be scheduled at 11:00am. “We won’t have to rush in the morning, then we can stop for lunch and I can be home in time for my nap”, you said.

It made perfect sense. But unfortunately, there were those few times that no appointments were available at 11:00 so we had to adjust for the appointment with the financial planner at 10:00 am or the outpatient surgery on a Friday afternoon at 2:00pm.

Seriously, who does surgery on a Friday afternoon at 2:00pm? End of the week, everyone’s tired; why?

The surgeon struggles to stitch your skin but it breaks and you keep bleeding. He tries again and again and again before he finally gets it. You are in pain. Normally you’re one heck of a brave trooper but not this time. “Ow!” you say, loudly. I can’t even look at all the blood but as he cleans and covers your wound with bandages and talks to you about infections, debridement, and wound care, I look back at your leg and see it braced against the cushion on the seat below you as we are sailing close-hauled to Martha’s Vineyard on a beautiful sunny day so many years ago.

“I’m paying for all that fun we had out in the sun and on the water,” you tell us. I don’t know that our young surgeon understands the joy of sailing to the Vineyard as he continues to stitch your skin.

I feel your hand on mine as we look at the pad you have with the appointment time on it.  I can’t believe I have screwed this up again by scheduling it at 9. But you say “it’s okay we’ll reschedule” which often meant you didn’t really want to go to it anyway.  You were done with the surgeries and the pain with the subsequent bruising and scars.

And then I realize that you’re in heaven with your friend, Mercy, and I don’t know why you’ve come to visit me in this 6:00am dream I am having…in New Hampshire, still under a year since you have died.

But I still can feel your hand.